Work Cited for “Social Media & Public Health” Series

Work Cited

Agree, E. M., King, A. C., Castro, C. M., Wiley, A., & Borzekowski, D. L. G. (2015). “It’s got to be on this page”: Age and cognitive style in a study of online health information seeking. Journal of Medical Internet Research, 17(3), 1–10.

Ahadzadeh, A. S., Pahlevan Sharif, S., Ong, F. S., & Khong, K. W. (2015). Integrating Health Belief Model and Technology Acceptance Model: An investigation of health-related Internet use. Journal of Medical Internet Research, 17(2), 1–17.

Anderson, M. (2015). Technology Device Ownership: 2015. Retrieved from

Backes, F. J., Mitchell, E., Hampel, H., & Cohn, D. E. (2011). Endometrial cancer patients and compliance with genetic counseling: Room for improvement. Gynecologic Oncology, 123(3), 532–536.

Barton, Ma., & Lin, K. (2012). Screening for ovarian cancer: U.S. Preventive Services Task Force reaffirmation recommendation statement. Annals of Internal Medicine, 157(12), 900–904.

Bean, S. J. (2011). Emerging and continuing trends in vaccine opposition website content. Vaccine, 29(10), 1874–1880.

Beggs, A. D., Latchford, A. R., Vasen, H. F. A., Moslein, G., Alonso, A., Aretz, S., … Capella, G. (2010). Peutz-Jeghers syndrome: a systematic review and recommendations for management. Gut, 59(7), 975–986.

Berkman, L. F., Glass, T., Brissette, I., & Seeman, T. E. (2000). From social integration to health: Durkheim in the new millennium. Social Science & Medicine (1982), 51(6), 843–57.

Berkman, N. D., DeWalt, D. a, Pignone, M. P., Sheridan, S. L., Lohr, K. N., Lux, L., … Bonito, a J. (2004). Literacy and Health Outcomes. Summary, Evidence Report/Technology Assessment No. 87. AHRQ Publication No. 04-E007-1., (87), 104.

Boland, B. (2014). Organic Reach on Facebook: Your Questions Answered.

Bonadona, V., Bonaiti, B., Grandjouan, S., Huiart, L., Caron, O., Colas, C., & Bonaı, C. (2011). Cancer risks associated with germline mutations in MLH1, MSH2, and MSH6 Genes in Lynch Syndrome. The Journal of the American Medical Association, 305(22), 2304–2310.

Braithwaite, D. O., Waldron, V. R., & Finn, J. (1999). Communication of Social Support in Computer-Mediated Groups for People With Disabilities. Health Communication, 11(2), 123–151.

Brickman Bhutta, C. (2012). Not by the Book: Facebook as a Sampling Frame. Sociological Methods & Research, 41(1), 57–88.

Burton-Chase, A. M., Hovick, S. R., Sun, C. C., Boyd-Rogers, S., Lynch, P. M., Lu, K. H., & Peterson, S. K. (2014). Gynecologic cancer screening and communication with health care providers in women with Lynch syndrome. Clinical Genetics, 86(2), 185–189.

Chen, A. T. (2012). Exploring online support spaces: Using cluster analysis to examine breast cancer, diabetes and fibromyalgia support groups. Patient Education and Counseling, 87(2), 250–257.

Chiang, A. L., Vartabedian, B., & Spiegel, B. (2016). Harnessing the Hashtag: A Standard Approach to GI Dialogue on Social Media. The American Journal of Gastroenterology.

CHIRr. (2007). Health Information Seeking. Retrieved from

Chung, D. C., & Rustgi, A. K. (2003). The Hereditary Nonpolyposis Colorectal Cancer Syndrome: Genetics and Clinical Implications. Annals of Internal Medicine, 138(7), 560–570.

Cole, J., Watkins, C., & Kleine, D. (2016). Health Advice from Internet Discussion Forums: How Bad Is Dangerous? Journal of Medical Internet Research, 18(1), 15.

Cooper, L. Z., Larson, H. J., & Katz, S. L. (2008). Protecting public trust in immunization. Pediatrics, 122(1), 149–153. 10.1542/peds.2008-0987

Craigie, M., Loader, B., Burrows, R., & Muncer, S. (2002). Reliability of health information on the Internet: An examination of experts’ ratings. Journal of Medical Internet Research, 4(1), 17–27.

Crocco AG, V.-K. M. (2002). ANalysis of cases of harm associated with use of health information on the internet. JAMA: The Journal of the American Medical Association, 287(21), 2869–2871.

Davies, W. (2016). Insights into rare diseases from social media surveys. Orphanet Journal of Rare Diseases, 11(1), 151.

Dutta-Bergman, M. J. (2004). Primary sources of health information: comparisons in the domain of health attitudes, health cognitions, and health behaviors. Health Commun, 16(3), 273–288.

Egoavil, C., Alenda, C., Castillejo, A., Paya, A., Peiro, G., Sánchez-Heras, A. B., … Soto, J. L. (2013). Prevalence of Lynch syndrome among patients with newly diagnosed endometrial cancers. PLoS ONE, 8(11).

Finfgeld, D. (2000). Therapeutic groups online: the good, the bad, and the unknown. Issues in Mental Health Nursing, 21(3), 241–255.

George, D. R., Rovniak, L. S., & Kraschnewski, J. L. (2013). Dangers and opportunities for social media in medicine. Clinical Obstetrics and Gynecology, 56(3), 453–62.

Gnadinger, T. (2014). Health Affairs Web First: How Do Health Policy Researchers Use Social Media?

Graham, J., & Simo, F. (2016). Facebook and Twitter: Users Process Mobile Content Faster.

Greene, J. A., Choudhry, N. K., Kilabuk, E., & Shrank, W. H. (2011). Online social networking by patients with diabetes: A qualitative evaluation of communication with Facebook. Journal of General Internal Medicine, 26(3), 287–292.

Greenwood, S., Perrin, A., & Duggan, M. (2016). Social Media Update 2016. Retrieved from

Grover, S., Stoffel, E. M., Mercado, R. C., Ford, B. M., Kohlman, W. K., Shannon, K. M., … Syngal, S. (2009). Colorectal cancer risk perception on the basis of genetic test results in individuals at risk for lynch syndrome. Journal of Clinical Oncology, 27(24), 3981–3986.

Halbert, C. H., Lynch, H., Lynch, J., Main, D., Kucharski, S., Rustgi, A. K., & Lerman, C. (2004). Colon cancer screening practices following genetic testing for hereditary nonpolyposis colon cancer (HNPCC) mutations. Archives of Internal Medicine, 164(17), 1881–1887.

Health Research In. (2012). Social media “likes” healthcare: From marketing to social business. Health San Francisco, (April), 40. Retrieved from

Hong, Y., Pena-Purcell, N., & Ory, M. (2012). Outcomes of online support and resources for cancer survivors. Patient Education and Counseling, 86(3), 288–296.

Hornik, R., Parvanta, S., Mello, S., Freres, D., Kelly, B., & Schwartz, J. S. (2013). Effects of scanning (routine health information exposure) on cancer screening and prevention behaviors in the general population. Journal of Health Communication, 18(12), 1422–1435.

Huber, J. (2016). A look at how social media helps connect patients with rare diseases.

Johnson, J. D., & Meischke, H. (1993). Cancer-related channel selection: an extension for a sample of women who have had a mammogram. Women & Health, 20(2), 31–44. [doi]

Kapp, J. M., Hensel, B., & Schnoring, K. T. (2015). Is Twitter a forum for disseminating research to health policy makers? Annals of Epidemiology, 25(12), 883–887.

Katz, L., Advani, S., Burton-Chase, A., Fellman, B., Polivka, K., Yuan, Y., … Peterson, S. (2016). Cancer screening behaviors and risk perceptions among family members of colorectal cancer patients. Familial Cancer. Retrieved from

Kazmer, M. M., Lustria, M. L. A., Cortese, J., Burnett, G., Kim, J. H., Ma, J., & Frost, J. (2014). Distributed knowledge in an online patient support community: Authority and discovery. Journal of the Association for Information Science and Technology.

Keller, B., Labrique, A., Jain, K. M., Pekosz, A., & Levine, O. (2014). Mind the gap: Social media engagement by public health researchers. Journal of Medical Internet Research, 16(1).

Khoo, C. S. G. (2014). Issues in Information Behaviour on Social Media. Proceedings of the ISIC Workshop on Information Behaviour on Social Media, 24(2), 75–96.

Klemm, P., Bunnell, D., Cullen, M., Soneji, R., Gibbons, P., & Holecek, A. (2003). Online cancer support groups: a review of the research literature. Computers, Informatics, Nursing: CIN, 21(3), 136–142. Retrieved from

Korda, H., & Itani, Z. (2013). Harnessing Social Media for Health Promotion and Behavior Change. Health Promotion Practice, 14(1), 15–23.

Kwon, O., Kahlor, L., & Kim, Y. (2011). Are Seekers Also Doers? Linking Health Information Seeking and Health Behavioral Intentions From a Risk Perception Perspective. In Annual meeting of the International Communication Association.

Laranjo, L., Arguel, A., Neves, A. L., Gallagher, A. M., Kaplan, R., Mortimer, N., … Lau, A. Y. S. (2014). The influence of social networking sites on health behavior change: a systematic review and meta-analysis. Journal of the American Medical Informatics Association : JAMIA, (September), 1–10.

Larson, H. J., Cooper, L. Z., Eskola, J., Katz, S. L., & Ratzan, S. (2011). Addressing the vaccine confidence gap. The Lancet, 378(9790), 526–535.

Lee, C. J., Gray, S. W., & Lewis, N. (2010). Internet use leads cancer patients to be active health care consumers. Patient Education and Counseling, 81(SUPPL. 1), S63–S69.

Lee, C., Zhao, X., & Pena-y-Lillo, M. (2016). Theorizing the Pathways From Seeking and Scanning to Mammography Screening. Health Communication, 31(1), 117–128.

Lewis, N., Martinez, L. S., Freres, D. R., Schwartz, J. S., Armstrong, K., Gray, S. W., … Hornik, R. C. (2012). Seeking cancer-related information from media and family/friends increases fruit and vegetable consumption among cancer patients. Health Communication, 27(4), 380–8.

Lin, G. G., & Scott, J. G. (2012). NIH Public Access, 100(2), 130–134.

Lu, K. H., & Daniels, M. (2013). Endometrial and ovarian cancer in women with Lynch syndrome: Update in screening and prevention. Familial Cancer, 12(2), 273–277.

Luckerson, V. (2014). Fear, Misinformation, and Social Media Complicate Ebola Fight.

Maher, C. A., Lewis, L. K., Ferrar, K., Marshall, S., De Bourdeaudhuij, I., & Vandelanotte, C. (2014). Are health behavior change interventions that use online social networks effective? A systematic review. Journal of Medical Internet Research, 16(2), 1–13.

Martinez, O., Shultz, A. Z., Rios, J. L., Sandfort, T., Carballo-Dieguez, A., Remien, R. H., … Rhodes, S. D. (2014). Still a hard-to-reach population? Using social media to recruit latino gay couples for an HIV intervention adaptation study. Journal of Medical Internet Research, 16(4).

Mast, C., Wang, F., Su, S., Seeger, J., Kinyanjui, T. M., House, T. A., … Hutson, S. (2015). Herd Immunity : Does Social Media A ff ect Adherence to the CDC Childhood Vaccination Schedule ? Pursuit-The Journal of Undergraduate Research at the University of Tennesse, 6.1(5), 9–21.

McGarrity, T., Amos, C., & Baker, M. (2016). Peutz-Jeghers Syndrome. Retrieved from

McLaughlin, M., Nam, Y., Gould, J., Pade, C., Meeske, K. A., Ruccione, K. S., & Fulk, J. (2012). A videosharing social networking intervention for young adult cancer survivors. Computers in Human Behavior, 28(2), 631–641.

Mitra, T., Counts, S., & Pennebaker, J. W. (2016). Understanding Anti-Vaccination Attitudes in Social Media. In Tenth International AAAI Conference on Web and Social Media.

Moorhead, S. A., Hazlett, D. E., Harrison, L., Carroll, J. K., Irwin, A., & Hoving, C. (2013). A new dimension of health care: systematic review of the uses, benefits, and limitations of social media for health communication. J Med Internet Res, 15(4), e85.

Morgan, R. J., Alvarez, R. D., Armstrong, D. K., Burger, R. A., Chen, L. M., Copeland, L., … Hughes, M. (2013). Ovarian cancer, version 2.2013: Featured updates to the NCCN guidelines. JNCCN Journal of the National Comprehensive Cancer Network, 11(10), 1199–1209. [pii]

Mowafa, H. (2013). The use of social media in healthcare: organizational, clinical, and patient perspectives. Studies in Health Technology and Informatics, 183, 244–248.

Naseri Boori Abadi, T., & Sheikhtaheri, A. (2015). Social media and health care: Necessity of facing their challenges. Iranian Journal of Public Health, 44(4), 596–597.

Nelson, H. D., Tyne, K., Naik, a, Bougatsos, C., Chan, B. K., & Humphrey, L. (2009). Screening for breast cancer: an update for the U.S. Preventive Services Task Force. Ann Intern Med, 151(10), 727–737. [pii]\n10.1059/0003-4819-151-10-200911170-00009

Newby, R., Brodribb, W., Ware, R. S., & Davies, P. S. W. (2015). Internet Use by First-Time Mothers for Infant Feeding Support. Journal of Human Lactation : Official Journal of International Lactation Consultant Association, 31(3), 416–24.

Niederdeppe, J., Hornik, R., Kelly, B., Frosch, D., Romantan, A., Stevens, R., … Schwartz, J. (2007). Examining the dimensions of cancer-related information scanning and seeking behavior. Health Communication, 22(2), 153–1.

Nölke, L., Mensing, M., Krämer, A., Hornberg, C., McMullan, M., Fox, S., … Skinner, H. (2015). Sociodemographic and health-(care-)related characteristics of online health information seekers: a cross-sectional German study. BMC Public Health, 15(1), 31.

Ramirez, S., Freres, D., Martinez, L., Lewis, N., Bourgoin, A., Kelly, B., & Lee, C. (2013). Information Seeking From Media and Family/Friends Increases the Likelihood of Engaging in Healthy Lifestyle Behaviors. Journal of Health Communication, 18(5), 527–542.

Riegert-Johnson, D., Roberts, M., Gleeson, F. C., Krishna, M., & Boardman, L. (2011). Case studies in the diagnosis and management of Peutz-Jeghers syndrome. In Familial Cancer (Vol. 10, pp. 463–468).

Ries, L. A., Harkins, D., Krapcho, M., Mariotto, A., Miller, B. A., Feuer, E. J., & Hayat, M. (2006). SEER cancer statistics review, 1975-2003.

Rogers, K. (2016). The “Ice Bucket Challenge” Helped Scientists Discover a New Gene Tied to A.L.S.

S.A., C., & A., L. (2014). The genetic basis of lynch syndrome and its implications for clinical practice and risk management. Application of Clinical Genetics, 7, 147–158. Retrieved from\n

Sadler, G. R., Lee, H. C., Lim, R. S. H., & Fullerton, J. (2010). Recruitment of hard-to-reach population subgroups via adaptations of the snowball sampling strategy. Nursing and Health Sciences, 12(3), 369–374.

Savolainen, R. (2011). Requesting and providing information in blogs and internet discussion forums. Journal of Documentation, 67(5), 863–886.

Setoyama, Y., Yamazaki, Y., & Namayama, K. (2011). Benefits of peer support in online Japanese breast cancer communities: differences between lurkers and posters. Journal of Medical Internet Research, 13(4).

Shigaki, C. L., Smarr, K. L., Gong, Y., Donovan-Hanson, K., Siva, C., Johnson, R. a, … Musser, D. R. (2008). Social interactions in an online self-management program for rheumatoid arthritis. Chronic Illness, 4(4), 239–46.

Shim, M., Kelly, B., & Hornik, R. (2006). Cancer information scanning and seeking behavior is associated with knowledge, lifestyle choices, and screening. Journal of Health Communication, 11(1), 157–172.

Singh, A., Singh, S., & Signh, P. (2012). YouTube for Information on Rheumatoid Arthritis — A Wakeup Call? The Journal of Rhuematology, 39(5), 899–903.

Smith, T. (1885). Successful Advertising (7th ed.).

Snow, K. (2016). Families Isolated By Rare Genetic Conditions Find New Ways To Reach Out. Retrieved from

Stephen, J., Rojubally, A., MacGregor, K., McLeod, D., Speca, M., Taylor-Brown, J., … Mackenzie, G. (2013). Evaluation of cancerchatcanada: A program of online support for canadians affected by cancer. Current Oncology, 20(1), 39–47.

Strafford, J. C. (2012). Genetic testing for lynch syndrome, an inherited cancer of the bowel, endometrium, and ovary. Reviews in Obstetrics & Gynecology, 5(1), 42–9.

Syed-Abdul, S., Fernandez-Luque, L., Jian, W. S., Li, Y. C., Crain, S., Hsu, M. H., … Liou, D. M. (2013). Misleading health-related information promoted through video-based social media: Anorexia on youtube. Journal of Medical Internet Research, 15(2).

Syngal, S., Brand, R. E., Church, J. M., Giardiello, F. M., Hampel, H. L., & Burt, R. W. (2015). ACG clinical guideline: Genetic testing and management of hereditary gastrointestinal cancer syndromes. The American Journal of Gastroenterology, 110(2), 223–62; quiz 263.

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Toscano, J. (2016). Policymakers Need to Start Taking Social Media Seriously.

Tsuya, A., Sugawara, Y., Tanaka, A., & Narimatsu, H. (2014). Do cancer patients tweet? Examining the twitter use of cancer patients in Japan. Journal of Medical Internet Research, 16(5), 1–8.

Ussher, J., Kirsten, L., Butow, P., & Sandoval, M. (2008). A qualitative analysis of reasons for leaving, or not attending, a cancer support group. Social Work Health Care, 47(1), 14–29.

Vaala, S. E., Hood, K. K., Laffel, L., Kumah-Crystal, Y. A., Lybarger, C. K., & Mulvaney, S. A. (2015). Use of Commonly Available Technologies for Diabetes Information and Self-Management Among Adolescents With Type 1 Diabetes and Their Parents: A Web-Based Survey Study. Interactive Journal of Medical Research, 4(4), e24.

van Lier, M. G. F., Wagner, A., Mathus-Vliegen, E. M. H., Kuipers, E. J., Steyerberg, E. W., & van Leerdam, M. E. (2010). High cancer risk in Peutz-Jeghers syndrome: a systematic review and surveillance recommendations. The American Journal of Gastroenterology, 105(6), 1258–64; author reply 1265.

van Uden-Kraan, C. F., Drossaert, C. H. C., Taal, E., Seydel, E. R., & van de Laar, M. A. F. J. (2009). Participation in online patient support groups endorses patients’ empowerment. Patient Education and Counseling, 74(1), 61–69.

Ventola, C. L. (2014). Social media and health care professionals: benefits, risks, and best practices. P & T : A Peer-Reviewed Journal for Formulary Management, 39(7), 491–520. Retrieved from

von Muhlen, M., & Ohno-Machado, L. (2012). Reviewing social media use by clinicians. Journal of the American Medical Informatics Association : JAMIA, 19(5), 777–81.

Waters, E. (2016). How Are Information Seeking, Scanning, and Processing Related to Beliefs About the Roles of Genetics and Behavior in Cancer Causation? Journal of Health Communication, 21(Sup2), 6–15.

Weissman, S., Burt, R., Church, J., Erdman, S., Hampel, H., Holter, S., … Senter, L. (2012). Identification of individuals at risk for Lynch syndrome using targeted evaluations and genetic testing: National Society of Genetic Counselors and the Collaborative Group of the Americas on Inherited Colorectal Cancer Joint Practice Guideline. Journal of Genetic Counseling, 21(4), 484–493.

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Williams, G., Hamm, M. P., Shulhan, J., Vandermeer, B., & Hartling, L. (2014). Social media interventions for diet and exercise behaviours: a systematic review and meta-analysis of randomised controlled trials. BMJ Open, 4(2), e003926.

Wong, C. K. M., Yeung, D. Y., Ho, H. C. Y., Tse, K.-P., & Lam, C.-Y. (2012). Chinese Older Adults’ Internet Use for Health Information. Journal of Applied Gerontology.

Wright, K. (2016). Communication in health-related online social support groups/communities: A review of research on predictors of participation, applications of social support theory, and health outcomes. Review of Communication Research, 4, 65–87.

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Dunn, A. G., Leask, J., Zhou, X., Mandl, K. D., & Coiera, E. (2015). Associations between exposure to and expression of negative opinions about human papillomavirus vaccines on social media: An observational study. Journal of Medical Internet Research, 17(6), e144.

Quattrociocchi, W., Scala, A., & Sunstein, C. (2016). Echo Chambers of Facebook.

Sassenberg, K., & Greving, H. (2016). Internet Searching About Disease Elicits a Positive Perception of Own Health When Severity of Illness Is High: A Longitudinal Questionnaire Study. Journal of Medical Internet Research, 18(3), e56.

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